First Challenges

The last couple days have been down days for our little guy. Alexander's oxygen needs spiked and were much higher than the doctors or we would like, and unfortunately, they can't figure out why. So instead of taking out the PICC line, they started 7 days of antibiotics. This is to ensure that the fluctuation in his vitals isn't due to any sort of infection and is the standard procedure. 

In addition, tomorrow he is scheduled for another EKG, to ensure that a valve that should be shut, hasn't reopened (when they checked this before, it was closed as it should be). They are just trying to rule out all issues that could be causing these flucuations. 

They decreased his food intake so he could instead focus on resting and breathing (instead of growing so much). We'll get a better update on his growth tomorrow when we are there for rounds. 

These days are scary because we are not clear on what's happening. Unfortunately it's what we can expect over the course of the next three months. He's going to have good days and he's going to have bad days. We just keep praying that he has less down days, that they can fix anything causing the down days and that Alexander stays comfortable. 

The biggest thing on my mind these days is hope. I don't think anyone can have enough of it. Looking at his photos gives me hope and so I'll share some new ones. 

This guy also gives us hope! Here Andrew is enjoying an ice cream cone for Dada's 33rd birthday!